The Benefits Of A Supportive Online Community For Those Who Live With Fibromyalgia

Each fibromyalgia diagnosis begins a unique journey, sometimes it’s a lonely one. If you have been diagnosed with fibromyalgia you may find comfort and strength through online support forums or groups, where you can discuss and share your feelings and experiences with others who are facing common challenges. Talking with other people whose lives are affected by fibromyalgia can create a sense of community. I’ve learned that others are experiencing similar thoughts and fears, and have similar questions, and that sharing and discussing these issues make me feel less isolated. I’ve become friends with some amazing people who also live with fibromyalgia. We don’t judge each other, we cry and laugh together, and we support each other on bad pain days. These wonderful online friends have enriched my life.

The Benefits Of A Supportive Online Community For Those Who Live With Fibromyalgia (1)

Being a member of a supportive online community can be liberating, allowing you to share your experiences, and have your feelings, fears and frustrations validated by others. I find it easier to share things with my online friends because I feel more comfortable typing the words than saying them. By sharing with those who understand what you are going through, you realise that others are also trying to work through the same personal struggles; this can help reduce your stress and anxiety.

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An online community creates a sense of belonging that can help you feel more understood and less alone. They provide 24-hour availability, as well as bringing together people from different geographic areas.  The internet knows no boundaries, I’ve become friends with wonderful people from all over the world.

Online support groups and forums allow people to learn from others and share invaluable practical tips and coping strategies for managing the day-to-day challenges of living with fibromyalgia. You can easily share resources such as websites, disability aides, information, and fibromyalgia research news. You can share your tips on how to manage pain and fatigue, you can discuss medication and the various side effects. Exchanging information and advice may provide you with a sense of control and reduce any feelings of helplessness.

The following are friendly supportive online communities for those living with fibromyalgia:

UK Fibromyalgia forum:

http://www.ukfibromyalgia.com/forums/

Facebook groups: 

https://www.facebook.com/groups/UKFibromyalgiaPrivate/

https://www.facebook.com/groups/FibromyalgiaImages/

https://www.facebook.com/groups/MenAndFibromyalgia/

https://www.facebook.com/groups/YoungPeopleWithFibromyalgia/

Keep smiling  🙂

Claire

x

UK Fibromyalgia

This entry was posted in Chronic pain, Fibromyalgia, invisible illness and tagged , , . Bookmark the permalink.

26 Responses to The Benefits Of A Supportive Online Community For Those Who Live With Fibromyalgia

  1. LaaLaa says:

    Having a community for support, is amazing. People know what others are feeling or might be going through, making it easier to communicate. It also gives others more of an understanding.

  2. Joanna says:

    I think its definitely important to have support and definitely more so from others that know what u maybe feeling and going through.

    • Claire says:

      It’s really important to have support and to connect with people who understand what you are going through 🙂

  3. Online communities can be so helpful when suffering from something many can’t relate to. Glad you’ve found some great ones!

  4. It must be so tough and lonely go through such a unique diagnosis, I imagine it’s really helpful to ‘meet’ other people online who are going through the same.

  5. Online communities like this can be a total lifeline. Especially when you feel like you are the only one going through something.

  6. Obviously I don’t suffer with this condition so this would really be applicable to me, but anything that can offer anyone additional support is a big plus to me!

  7. It must be so refreshing to be able to talk to people who know exactly what you are going through x

  8. I think that it is lovely that there are support groups that can help you support each other and encourage each other to stay positive x

  9. Liz Mays says:

    This is just one of the best things about the internet. I love that there are so many supportive communities people can find!

  10. hannah says:

    Support groups are a really good idea. It’s great to talk to others who have the same condition x

  11. My friends sister has fibromyalgia and I know for a long time they received very little support. I wonder if she is aware of these help sites. I’ll ask x

  12. Tara says:

    Online communities make everything just a little easier!

  13. Giftbearer says:

    Very good points! I have really found online groups to be a lifesaver; not only for the emotional support they provide, but also in terms of practical help with who are the best doctors, best research centers, and other related resources.

  14. Giftbearer says:

    Very true! These groups are indispendsible!

  15. Emily Leary says:

    I can only imagine how challenging it must be. I too have found that, where particular health or family challenges are concerned, online groups of people on a similar journey to yourself can be a huge source of comfort and strength.

  16. Facebook communities can be such a great support, I’m in a few myself – it’s great to know there are communities out there for all kinds of people and topics!

  17. Communities are an amazing part of the internet. Advice and support is always available 24-7 as people are all over the world. I have benefitted greatly from them x

  18. I’m so glad you get support from fellow FM sufferers. I think online communities are often underestimated. Some brilliant friendships have come from Online groups x

  19. Hannah says:

    One thing I do really love about the internet is the communities and support you can get x

  20. I think it is important to have a support group generally whether you suffer from an illness or not. We all need a shoulder to cry on and someone to talk to sometimes.

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