Each fibromyalgia diagnosis begins a unique journey, sometimes it’s a lonely one. If you have been diagnosed with fibromyalgia you may find comfort and strength through online support forums or groups, where you can discuss and share your feelings and experiences with others who are facing common challenges. Talking with other people whose lives are affected by fibromyalgia can create a sense of community. I’ve learned that others are experiencing similar thoughts and fears, and have similar questions, and that sharing and discussing these issues make me feel less isolated. I’ve become friends with some amazing people who also live with fibromyalgia. We don’t judge each other, we cry and laugh together, and we support each other on bad pain days. These wonderful online friends have enriched my life.
Being a member of a supportive online community can be liberating, allowing you to share your experiences, and have your feelings, fears and frustrations validated by others. I find it easier to share things with my online friends because I feel more comfortable typing the words than saying them. By sharing with those who understand what you are going through, you realise that others are also trying to work through the same personal struggles; this can help reduce your stress and anxiety.
An online community creates a sense of belonging that can help you feel more understood and less alone. They provide 24-hour availability, as well as bringing together people from different geographic areas. The internet knows no boundaries, I’ve become friends with wonderful people from all over the world.
Online support groups and forums allow people to learn from others and share invaluable practical tips and coping strategies for managing the day-to-day challenges of living with fibromyalgia. You can easily share resources such as websites, disability aides, information, and fibromyalgia research news. You can share your tips on how to manage pain and fatigue, you can discuss medication and the various side effects. Exchanging information and advice may provide you with a sense of control and reduce any feelings of helplessness.
The following are friendly supportive online communities for those living with fibromyalgia:
UK Fibromyalgia forum:
Keep smiling 🙂