What do you know about Fibromyalgia?

What do you know about Fibromyalgia? Unfortunately lots of people are still not aware of the condition or the terrible effects it has on both sufferers and their families.

Fibromyalgia (FMS) is an invisible illness, we may look fine on the outside but we are in so much pain.  Most people look at me and think there is absolutely nothing wrong, but so many things are a struggle.  I feel old before my time.

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There is no cure for Fibromyalgia, it is a long term condition, it is chronic pain, we sometimes have good hours or days but it will return with a vengeance.  The pain varies in intensity from moderate to severe and we can feel it anywhere – my shoulders, neck, left arm, left knee and hips are where I feel the worst pain – I have severe burning, throbbing and shooting or stabbing pains.  It can consume my every thought, it’s like being a prisoner in my own body.  I take opioids and other strong pain killers but they mostly only take the edge off the pain.

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Fibromyalgia not only causes significant pain but also quite severe fatigue, and it can interfere with our ability to carry out daily activities. I’m often so exhausted, everything becomes an effort; it’s like trudging through a muddy field because my legs feel so heavy.  Even lifting my arms is so tiring as they feel like lead weights.

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We may feel so tired and exhausted but a refreshing sleep is impossible. Whichever position I lie in I feel such discomfort and when I finally fall asleep the pain wakes me up again. In the morning I’m so stiff that even getting out of bed or getting dressed is difficult and takes so much energy, I dread walking up and down the stairs as it hurts so much – I have to get up earlier than normal for work because it now takes me longer to get ready for the day ahead.

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We can also experience a variety of other symptoms including:

  • temperature sensitivity
  • headaches
  • cognitive and memory problems (sometimes referred to as ‘fibro fog’)
  • numbness or tingling of the extremities
  • irritable bowel syndrome
  • painful menstrual periods
  • restless legs syndrome
  • depression
  • bladder problems
  • sensitivity to loud noises or bright lights.

Some people may have a genetic predisposition to the condition, and events – or extreme stresses on the body such as surgery, trauma or infections – may act as a trigger.

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Living with fibromyalgia is challenging, it can affect every part of our lives – mind, body, and spirit – but we have to find the strength to carry on and live with the pain and fatigue.  Writing this blog keeps me going, my little challenges (learning to bake, cook and even make my own washing powder, soap and gifts) help distract me from the painful symptoms of fibromyalgia and the support and kind comments I receive make me smile and keep me motivated 🙂

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We need to raise awareness about Fibromyalgia, we need the government and the health department to recognise this illness for what it is, a debilitating life-changing illness and give more funding to help find a cure so that we can find a better life free from severe pain and fatigue.

Keep smiling 🙂

Claire

x

UK Fibromyalgia

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134 Responses to What do you know about Fibromyalgia?

  1. Deborah Aikman says:

    You have described my life in a nutshell! Thank you & I shall share this with all the non-believers in my life.

  2. julie roberts says:

    I think the doctors that we see should have better awareness, of this condition, and be more sympathetic to people with this condition, whenever I mention fibromyalgia, to my doctors they just don’t help at all, most of the time they ignore the subject, with oh well you just have to live with it, not helpful at all.

  3. I suffer from fibromayalgia as well, you explained the type of pain I go through very well. I am sick of trying to explain myself yo others as they have no clues how we are affected by this. Thanks for this, keep up the good work.

  4. Gaynor says:

    This is the first time I have seen all my symptoms in one place, at the moment its the itching tingling and wake up pain that get me. I have tried so many mattresses, I now take diazapan in the middle of the night which helps slightly with the pain I know will wake me, thats after the morphine before I go to sleep and all the other drugs, Oh and the allergic reaction to insulin at the moment, but it can be strawberries when it wants, or butter, then I can eat them with no reaction at all. So thank you, am sharing

  5. Good you are raising awareness. A lot needs to be said. Great post.

      • Beth says:

        You nailed it. This is exactly what we Fibromyalgia fighters deal with every single day. I struggle every day to make it to work, I don’t know how much longer I will be able to push myself. Just driving is becoming a huge issue. My arms and legs fall asleep, I get to work and struggle all day. I am so afraid I won’t be able to work much longer. I had to find a new Dr due to insurance, I was just there a couple days ago and brought up my fibromyalgia his response was isn’t that way you see a rheumatologist?? Thank you for your blog You now have one more follower.

  6. Tori Gabriel says:

    Invisable disabilities are awful. People are so quick to judge (and always negatively). I have Crohns Disease and some of the symptoms are similar. I also feel The Fatigue as I call it. The worst thing about my Crohns is I get seconds warning to find a toilet so I have a RADAR key to use disabled facilities. An old woman once stopped me on the way to the toilet to tell me I shouldn’t be using it! Wish I’d pooed on her.

  7. This is such a great post. I learned quote a bit!

  8. Interesting. Thanks for sharing!

  9. Very well put this encompasses my life and I can attest to most if not all of the contents written…

  10. A Moment with Franca says:

    I’m so sorry that you suffer of Fibromayalgia. I haven’t heard of this before but now I’m glad I know and will share this post. You are a strong and brave woman!! Thanks for sharing, x

  11. julie clive says:

    Thankyou for sharing your life with us..
    ive fibro and although medicated with western medicine i still suffet..ive started my own holistic therapy business to help people like us…i find reiki is great for pain..as a qualified aromatherapist gentle body massage and ive developed a cream for pain..my customers swear by it…
    also refexology works einders for psin and tight muscles… i continue to searchfor support for this cruel illness….hugz n love..im on facebook julie clive if anyone needs to connect..x

  12. Thanks for such a great awareness, it is helpful for so many ppl i know that shares the same trauma. God bless !! Keep up the good work 🙂

  13. Very informative post!!

  14. Gail Easton says:

    great description of our daily fight, I hope you dont mind if I steal it and post in on fb, one bit per day over this week to keep it up there. had a great time when i was off with depression and then the summer hols rediscovered my love of baking but now back to work too knackered to do it, but I am determined to make something each week, I love your blogs so positive. have a spoon from me xx

  15. ellynfogarty says:

    I have POTS so can relate in so many ways. I am also waiting for a possible fibro diagnosis as I suffer with many of the same symptoms and pain.
    Thank you for sharing this. Sending spoons your way xo

  16. chefjoe11 says:

    These symptoms are so hard to live with everyday. I will share with my community.

  17. Janet Sidwick says:

    I suffer with all of those symptoms and more due to hypermobilty syndrome too. I can’t remember a day when I’ve not had one or more of those symptoms, we learn so well to adapt as we have no alternative. I hope this week awareness is increased all round as its so misunderstood as we don’t look sick. Thank you x

  18. Beautifully put claire I will share too and do a piece on my blog and facebook to raise awareness this week too 🙂 xx

  19. Hi Claire previous comment I wrote as my daughters Blog (smileyelliesdiary) didn’t realise she was still logged in thought it was my account :/ Been a bad day today. xx

  20. Your describing my every day…been 3 years so far and still getting a diagnosis..i am now finally awaiting an appointment with a nurologist specializing in Fibromialgia.
    But its been hell getting this far….
    Pain killers are all i have and they do little to nothing..
    Thankyou for sharing your story….im thankful im not going mad..and its not in my own head..
    Certainly going to share

  21. Peggy Ogden says:

    I have fibromyalgia, crohns , diabetes and arthritis ,I hurt all the time don’t like to take more meds. Don’t know what other reactions I might have. My daughter’s have also been diagnosed with fibromyalgia .They also have a lot of pain. My oldest daughter uses a electric wheel chair on bad days.

  22. Deanna Acosta says:

    I have had Fibro for 27 years now and it just gets worse year after year. This website has been fantastic on explaining a lot about symptoms I have but didn’t they were linked to my Fibro. Thank you so much you are a god send.

  23. Julie says:

    Great awareness piece! Thank you for sharing it.

  24. Emma says:

    I to suffer from fibromyalgia. Some people don’t understand what it is. My place of work especially my boss can’t seem to get that I look fine but feel so poorly sometimes I just wish people (some people) would take time to understand as it is a hard disability to have as it is.💜

    • It is difficult for non fibro people to understand, that’s why we need to raise awareness. Perhaps send your boss a link to this blog or print off some information for him/her. Only fellow fibro warriors really understand the excruciating pain we endure on a daily basis. Gentle hugs xx

  25. Thank you for writing this. I have read symptom lists for Fibro, but it is so different to hear what it is like first hand. I had no idea of the amount of pain that can be associated with it.

  26. Ruth Ann says:

    You have nailed it Claire! Thank you for this wonderful explanation. Hopefully we can raise awareness, especially in the medical field.

  27. Laurena Baum says:

    Another symptom…..issues with teeth. Those with fibro tend to be in so much pain that they unknowingly grit or grind their teeth. This leads to cracked teeth, broken teeth, and holes that allow for decay. I ‘m having another root canal next week due to the damage I’ve done to my own teeth.

  28. Reblogged this on Thoughts, Opinions, and Everything In Between and commented:
    Whatever my problems end up being, I can relate.

  29. Pam Morse says:

    My son has this condition and your right we nonsufferes don’t fully understand the pain that your in we tend to say yes well we have pain and we are tired as well but reading your blog has given ne a bit of insight in to his confition I will definitely be much more understanding in the future its true what you say we tend to say well you seem to get around ok and assume he’s not as bad as he says so thanks for putting me straight

  30. chris morse says:

    i am a male and recently been diagnosed. from what i am told its not so common in men. the biggest thing i find is that people think im faking. they have no idea what ts like and your blog hourjust summed up exactly how i feel

    • People don’t understand how a person can endure so much pain every day and that it will last forever unfortunately. We definitely need to raise awareness and increase understanding. More money should be given for further research into this condition. Gentle hugs xx

  31. Sharon says:

    I’m in the struggle as well. Always, but praying not forever.

  32. Gosh, it sounds absolutely awful. I didn’t realise how many different symptoms of Fibromyalgia there are. I hope the government and NHS can give it the attention it deserves x

  33. rebecca says:

    Amazing post, recently diagnosed and sums up life completely. My mum has had it for the past 10 years so i know just had bad things can get. The lack of understanding from people without the condition can make things worse sometimes so we need as much awareness as possible 🙂 well done on such a fab post!

  34. As a graduating medical student, I’m glad to see people are blogging about their illnesses. I promise you fibromylagia is definitely talked about in our curriculum. However, the treatment options are definitely limited, and it is a validated medical condition. hopefully with time, research and better understanding will help patients cope. It’s tough because it’s mental and physical but hang in there!

  35. Melanie Edjourian says:

    That’s a really informative and well written post. I may have to look into that as I have quite a few of the symptoms and thought I was just falling apart after having babies.

  36. Jane oliver says:

    Think I need to go see my Docter as the way you have described your illness is as if you have described how a feel on a daily basis it’s my back and knee that is worse but I get sever pain in the tops of my arms and no mater were any one touches me it’s sore ty for posting this more people will benefit from such a good thing you are doing ty

  37. Dawn Wright says:

    This is great, all my symtoms together.i don’t look sick but I understand what is going on inside me.thanks xx

  38. Mary Annette Jackson says:

    Hi I Mary I have all the same issues and had my Gallbladder taken out as well i hurt all the time and have the stomach woo,s neck pain shoulder pain and back pain and my head hurts and for get a lot of things as well this is my new life since october of 2010

  39. I have never hear of that so it was very interesting read!

  40. I’ve never hear of fibromyalgia & the symptoms really surprised me, I can’t imagine what it must be like to have this condition – thank you for raising awareness.

  41. Liz says:

    Interesting to read everyone’s comments..
    I’ve had Fibromyalgia for a long time I think, but only recently diagnosed by my GP, I’m finding it unbareable at times, the pain is so bad and all over shoulders, legs, feet, knees etc.. And sleep is another problem.
    I agree that holistic therapies help, I’ve been having massages to hep relax the muscles and it stops the burning ache for a while, but these cost a lot of money, and at the moment I’m not allowed to claim any benefits, and I am not fit enough to work. So with no income except for my husbands, trying to cover all the bills, mortgage and food, it’s very difficult to find any spare for a £20 massage, even though it’s the one thing I know that does work.
    It’s a shame we can’t start a club to find these therapies for free somewhere, as they are really good and beats taking more and more medication!

    Hoping everyone is having a painless weekend. xx

  42. Daniella says:

    I don’t know a lot about the illness but I do know a lot of people who suffer from it especially from the blogging community and quite a few have had a fight on their hands when it comes to being diagnosed which is terrible.

  43. Sarah Bailey says:

    I know way to much about Fibro 🙁 it is such a horrid illness and why that so many poo poo at just being in the mind (yeah right you try living with it for a day to those people) I hope one day more people at least try and understand what life is like on a daily basis for us. x

  44. I don’t have Fibro but I have Rheumatoid Arthritis which is an invisible illness very similar to fibro. I can relate to everything you have said. It’s not easy to live with something like this every day but you have to keep smiling and believe in yourself, hopefully one day it will get better 🙂

  45. Jenni - Odd Socks and Lollipops says:

    I knew of this, but not the ins and outs – so thank you for sharing this. It is such a great thing to raise awareness so that more support can be given to sufferers

  46. Anushree Ganguly says:

    Your posts are so positive Claire and I know life is not easy but that one attitude ,being positive can make such a difference ! We are all together with you x

  47. This is a condition I had only heard of recently when someone suggested I might be suffering from it. Although I do have quite a few of the symptoms, I just sort of keep going. More needs to be done to raise awareness for sure x

  48. I must admit, I didn’t know what fibromyalgia was until I read your post. Thank you for helping me to understand and for raising awareness… you are truly inspirational Claire 🙂

  49. Ali says:

    This is a great post thank you – I didn’t know anything about Fibromyalgia before so this is really useful

  50. Bonnie jenkins says:

    You have described me as well as your self most people just don’t get the understanding of this disease that does exist & controls our everyday life style. We’re not lazy or quitting on ourselves so people & Dr’s don’t give up on us.I’m copying this to my fb page.

  51. Do you get disability for fibromyalgia ?

  52. angel2rainbows says:

    Claire, this was such an interesting read. Given I had never heard of fibromyalgia before, you have already succeeded in raising awareness. Plus all the comments above are a definite testament to this. Look forward to reading more of your blog x

  53. This is so inspiring to those who have just been diagnosed with this disease. I have had fibromyalgia for over 10 yrs and it has always felt good to me to know I am not alone in what is happening to my body as well as my mind. Thanks so much for sharing. 😀

  54. Ickle Pickle says:

    This is a brilliant post – you have shared simply but effectively exactly what this condition is, and what it does to you. Kaz x

  55. Caroline says:

    I’m really struggling with throat and stomach pain at the moment. Does anyone else have this? Any advice please?

    • kaseem bartlett says:

      Thank you so much for setting up this blog. I have not been “officially ”
      diagnosed by seeing a rheumatologist -I have to wait 2-3months for that. But my gp has carried out various tests over the last several months for my pain I had been feeling in muscles and tiredness, and everything came back negative, she then said good chance it was Fibromyalgia and gave me a print out to read.
      I was numb and felt so alone until I read your post and it made me cry, as I knew then there were people out there knew how i was feeling. Thank you so much xxxx

  56. kaseem bartlett says:

    Thank you xx

  57. Sarah Bailey says:

    My initial responce to this was way to much.. It’s something I wouldn’t wish on anyone 🙁

  58. Rita says:

    I am on pinterest all the time and it is so nice to find all kinds of pins about fibro and chronic pain. It is beyond frustrating when no one understands and people think its a big joke and not real. It is also very interesting to learn about so many other symptoms of fibro, which I have, but didn’t know that it could even be caused by the fibro. The entire time I was thinking I am going nuts because of all these strange things going on with me. I feel a little less insane now-just a little lol. Look forward to following your board! Thank you!

  59. ziggydog00 says:

    Hi! Thank you for this blog, it’s wonderful 🙂 I was diagnosed in 2014 and learning to live with my new diagnoses so finding things like this is always so great so thank you so much for sharing your experience and thoughts!! I wanted to share a fantastic support website ( and mobile app) just for us fibro sufferers that I’ve found to be the most amazing lifeline, its http://www.myfibroteam.com. I use an iPhone app they have but it’s strictly for fibro people to talk and vent and help each other get thru each day. There is always someone wonderful to talk to when you are feeling overwhelmed. I hope if you didn’t know about it maybe you’d find it helpful too 🙂

  60. Jenny says:

    I just happened to find a woman on Pinterest that posted this on her Fibro board. I was diagnosed five years ago, but I am sure I have had it most of my life. I have meds that help me now, but there is SO much that people don’t understand. A few of my doctors are sympathetic and understand. Some of them don’t even think it is real, because there is no definitive test for it. I don’t understand them. I thank God I have such an understanding husband. I would never make it otherwise. I hope to return here more often. Jenny

    • Hi Jenny, thank you for stopping by 🙂 I’m glad that you have seen some doctors that understand fibromyalgia, I’m sure they are the younger doctors who have studied about it in medical school. It sounds like your husband is a keeper 🙂 Take care xx

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  63. Barbara says:

    Hi Claire: Although I don’t suffer with fibrimyalgia, I do battle hypothyroidism. So I have studied it through numerous drs, nutritionists, and health coaches. I do believe I am correct in saying they are both autoimmune diseases. As the current medical establishment seems to not offer much hope or knowledge in treating many ailments, their strenth lies in making the initial diagnosis. Once you have that, there are vast networks of resources to explore to take your health back through diet, supplements and naturally working with your body to help heal yourself. Most western medical Drs drug and cut. They really don’t know nutrition and healing. However, many have explored beyond our failing system and there are numerous networks of them working to create better options for actually seeking out root causes to bring real healing. I can suggest a few for you to explore and they will lead you to a vast network of many more. There is so much info available online and a good place to start is with Dr Ax, Suzy Cohen, Dr Sara Godfried, Dr Alan Christianson and JJ Virgin. There is so much to learn from them. I wish you the best on uour healing journey!

  64. Cheryl Able says:

    Living with fibromyalgia has been a nightmare for me. I have suffered through doctors who think I am faking these symptoms or the extremity of pain. Many physicians don’t take this condition seriously. It is frustrating, upsetting and painful enough to live with this condition without having to deal with the disbelief of those who should be working to relieve your symptoms. Many of the symptoms I have experienced I did’nt know we’re fibro related till I started reading more information like what you have shared. Thank you and all those with fibromyalgia for sharing. Keep up the good work.

    • I hope you find a good doctor soon Cheryl, my GP is very good at understanding fibro, change GP if you have to, the younger doctors study about fibro in their training 🙂 x

      • Darlene says:

        Claire I appreciate your story. I was a nonbeliever because that is what I was taught. But I have been diagnosed with fibro, osteoarthritis and thyroid issues. I find my biggest challenge is the insurance companies, which will not approve certain meds to help relieve the fibro. I was wondering to you feel antsy all over at times?

  65. Kim Sloboda says:

    Hi, Claire! Thank you for the beautiful writing about such a difficult and confusing illness. I have suffered with fibro for well over 20 years now. In the “earlier days” of being diagnosed, there was so little information out there on this illness, and SO FEW doctors who knew of it or even WANTED to know of it! Yes, I have made all the rounds of going from doctor to doctor, test after test. And if I went to an orthopedist or dentist or even my GYN — they were all men too, by the way — they insisted that fibromyalgia was “a garbage can diagnosis” for a bunch of symptoms that’s all in the head, and there is no such thing as fibromyalgia. They would look at me with disbelief and even horror at the medications and pain relievers the rheumatologist and later the pain management specialist would have me on, saying, ” My god, you need to get off that stuff! You can’t take that drug! Don’t you understand they (the other doctors) are wrong and are just placating and feeding into this hoax of an illness?” Imagine now, being me, in pain, standing in this doctors office or exam room, being berated and made to feel stupid and insignificant for taking pain meds and for feeling the way I do. Ultimately, especially in the really old days, I would often get, “Have you been to a therapist and have you talked about this? Is everything okay with you and your husband? Are you under stress? Do you feel depressed?” Wow, I thought. This person REALLY doesn’t get it! We are ALL under stress in this day and age (yes, even then). I have an ABSOLUTELY wonderful, caring and SUPPOERTIVE husband. No, the only thing that gets me somewhat depressed is listening to doctors/people like you who are narrow minded and want to make everything that doesn’t fit into the symptoms from a book, become something psychological. And I DO agree that EVERYONE could spend some time with a wellness coach, therapist, mentor, etc and truly learn about themselves — but it most likely, for those suffering from fibromyalgia, not do ANYTHING to stop the pain. But the right therapist or program or acupuncturist or reiki practitioner CAN help you by teaching you skills and techniques to help LESSEN some of the pain, and skills to not let the fibro pain spiral into more symptoms. Having had certain symptoms develop when I was in in my teens (yes, it can actually start that early! I have students who have been diagnosed that early too), but often we travel from doctor to doctor chasing relief from the SYMPTOMS: Got IBS, you go to a gastroenterologist. Got constant headaches or get dizziness? Go to a neurologist. Got joint pain? Go to an orthopedist. Got anxiety or panic attacks? Go to a psychologist. And as what happened to me, I got “Labeled” with anxiety issues, when in reality, it was all fibromyalgia! For YEARS I felt and unfortunately believed (because we TRUST our doctors) that I truly suffered from panic attacks! Eventually I couldn’t drive, didn’t want to stray far from the house, wouldn’t go to restaurants or second floors in department stores. I stopped going to these places because I got anxious and then had all these symptoms that were so horrible. Sound familiar to anyone out there? Until I realized, through a lot of reading, research and some very GOOD, KIND and educated doctors, and I really looked at the cause and effect. And what I discovered changed my life 180 degrees: My “panic attacks” DID NOT cause the symptoms!! It was COMPLETELY the other way around!! It was the symptoms (of fibromyalgia — and there are many!) that CAUSED THE PANIC/ANXIETY ATTACKS!!! This was HUGE! To realize I was MISDIAGNOISED and Labeled with something I DIDN’T EVEN HAVE! It is this realization that changed my life completely. I now am traveling, doing things, and have a much brighter life (yes, even with the fibro!). The misdiagnosis had so totally stifled my abilities to do things. So now, with this new knowledge, I was able to have MORE CONTROL. To be in charge of my life, my diagnosis, my choice of doctors and meds. My advice is to find a doctor you feel good about, someone who feels like the right fit to help you. Be guided by your gut instincts — it is never wrong! You DO have power and control, but only if you exercise that control, will you get past wrong labels and gain the strength and conviction to deal with insensitive or judgemental people. If you need to take a nap, then take it! If you have a day of excessive pain, do less that day, or put that activity off for another day. Laundry and vacuuming CAN wait — take care of yourself first — WITHOUT FEELING GUILTY! If you can’t sleep, read a book. Just resting in bed is much better than the constant worry about NOT sleeping. Explain to your friends what you have — fibromyalgia, an inflammatory illness that brings about these (explain) symptoms. No one can help you more than you can help yourself. Awareness is the key. I don’t hide my problem — I WANT to educate people, let them know this is VERY REAL and VERY debilitating and frustrating. We don’t like it, so believe all of us when we say, we would appreciate more thoughtful interactions and not a roll of your eyes when I explain I am tired today, or I can barely move today, or I have tears in my eyes because I am just so tired of pain and feeling crappy. Eventually, there WILL be an answer and hopefully a cure is on its way. Until then, I tell anyone suffering, to stay strong and read and listen and talk to other sufferers. You are NOT alone!

    • Thank you for your kind words! It can be a struggle to find an older doctor that has kept up to date with medicine – fibro is very real and younger doctors are studying about it 🙂 How dare misinformed doctors judge us! I wish they could just feel the pain and fatigue for just an hour and see how they cope! Only fibro warriors like ourselves truly understand our daily battle. We are definitely not alone xx

  66. Jess says:

    My mom has fibromyalgia. An I see her pain her struggles. I wish they had a cure. I wish there was much more than pain pills. If anyone has any pain relief information besides pills. Please let me know. Thank you. An God Bless.

  67. Barbara Catterall says:

    I have lived with fms for about twenty years…since a traumatic total hysterrectomy. I have..from reading articles usually on pinterest..discovered all the myriad other stuff that eventually comes with it…itching…weird stabbing pains…that weird worrying chest pain….hugely embarrassing facial sweating…problems with pain in my feet/toes…sleeping for 24 hours without getting any benefit…hand/foot exczema…permanent double vision…hypomobility..fibro fog big style…clumsiness…unsteadiness..as well as diabetes..hypothyroidism…yack the list goes on and on and certainly in my case its getting more severe as i get older. One of the ‘best’ comments back to me when relayed that i really wasnt well…’oh…you hide it well’!!!
    My family isnt interested but some of my girlfriends are more sympathetic. For me it isnt something i really talk about…most people get bored with listening to these sort of symptoms….as you say..i look on a slightly easier day well and groomed and even showered!! I cant even have massages..let alone let my sweetest husband give me a huge hug!!!
    Dont get me started on the pain levels and stiffness…i now dont trust myself to drive long distances for these reasons or for the fact that i easily and often can fall asleep without realising…when reading…using my phone…on the toilet…now thats a little bit amusing!!! The world i knew is shrinking before my eyes and theres nothing i can do about it…i am living a half life.
    I dont know why i started this…probably because someone out there will listen and sympathize…go figure!! Thanks in anticipation.😎

    • Claire says:

      Sending you a huge hug, I completely understand every symptom you’ve listed. You are definitely not alone and there are plenty of other FMS sufferers out there that want to listen 🙂 Have you joined the UKFibromyalgia forum or Facebook group? xx

  68. Kathleen M. says:

    You have explained this pain perfectly, I will definitely be sharing it.
    With all the technology out there it’s too bad someone couldn’t invent an item, that allowed others to experience exactly what we feel. But that would be cruel.

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